Dementia Live in Care

Dementia Live in Care

Understanding Dementia

Dementia is not a single illness but a group of symptoms caused by damage to the brain. Becoming forgetful does not necessarily mean that someone has dementia. Memory loss can be a normal part of ageing and it can also be a sign of depression or stress. Not drinking enough water throughout the day, or having a UTI, (urinary tract infection), also can lead to confusion and memory loss.

Dementia is caused by a number of different types of diseases to the brain, including:

  • Alzheimer’s disease
  • Vascular dementia
  • Fronto-temporal dementia
  • Lewy body disease

The most common types of dementia are Alzheimer’s disease and vascular dementia. They have similar symptoms but develop in different ways.

Our dementia live in care provision is a bespoke service for people to help them stay independent and remain in their own homes.

Dementia Care personalised to your needs

We have a Dementia Champion team.  Some of our admin staff are volunteers who help people understand what it’s like to live with dementia, encourages others to make a positive difference to people living with dementia in their community. They do this by giving them information and ideas on how they can help.

We know that those living with dementia will maintain good relationships with partners and friends and often still enjoy their hobbies.  They benefit from the 24 hour presence of a live-in carer who can take them out to places of worship, community events, garden centres, or even a walk down the street. 

The live in carer will:

  • Provide help with all aspects of personal care during the live in care assignment
  • Facilitate socialisation and social activities e.g. visiting family/friends, walks, cinema/theatre, meals out, going for a drive (where required), reading, etc.
  • Monitor progress and recording notes on daily record sheets relating to the care and support given
  • Liaise with families or/and office team members to provide a consistent approach that meets the individual needs of each service user.
  • Provide general housekeeping e.g. cooking, shopping, domestic duties, etc., and helping Service Users to maintain all aspects of their domestic lives

Dementia Care Training

Our dementia-trained home carers provide full time care and companionship, whilst they are living in their homes with them; and are trained to build a supportive relationship over a number of weeks.  People still need to feel human love and affection. Our carers are taught to be patient and to offer reassurance and encourage a sense of security.  Unfortunately, sometimes those living with Dementia may not be able to express this need clearly. They may ask for certain things, but mean something else, especially with regard to emotional needs.

The carer may use some form of visual reminders, like an Activity Planner wallchart, to reinforce key activities throughout the day.  They may also collate historical information, from discussions with the person they are caring for, to construct a Life Story.  This Life Story will enable the care worker to engage the person with meaningful conversations involving people from past situations and events.

Sunshine Live in Care has a working relationship with the Dementia Action Alliance of over 150 organisations in England; who by sharing best practice, are able to take effective action on the many different dementia conditions. By working in partnership, we consult with people living with dementia, and those that care for them.

For several years we have been encouraging our live in carers to become Dementia Friends.  Register with the Alzheimer’s Society to become a Dementia Friend by using this link:

https://www.dementiafriends.org.uk/register-digital-friend

 

Our live in dementia carers are expected to:

  • Preserve independence & dignity of Services User’s as much as possible.
  • Report any changes/issues concerning the Service User, or the care being provided, to the office team
  • Observation of mental alertness and general physical condition
  • Reading and abiding by the care plan set out by the assessor in the Care Plan.
  • Supporting and understanding each individual Service User’s needs
  • Maintaining confidentiality and committing not to divulge information to third parties unless consent to share information has been given in writing
  • To report back any areas of risk, not previously identified, to our Nurse Manager.
  • To attend and engage in regular supervisions, appraisals and performance review accepting and providing constructive feedback.

Key Outcomes:

  • People will have the information they need to understand the signs and symptoms of dementia. Those concerned about dementia will know where to go for help. The time between people presenting symptoms to a doctor and being diagnosed will be as short as possible for everyone.
  • Everyone affected by dementia will get information and support in the format and at the time that best suits them. They will be supported to interpret and act on the information so that they understand their illness and how it will impact on their lives, including any other illnesses they may already have. They will know what treatments are best for them and what the implications are and they will be supported to make good decisions.
  • Everyone living with dementia will receive the best dementia treatment and support, no matter who they are or where they live. They will feel that their personal needs have been appropriately assessed and that their treatment and potential consequences of treatment have been well planned and delivered in a coordinated way that is appropriate to their individual needs and preferences. They will be able to exercise personal choice in social care and on-going support will be of a high quality.
  • People living with dementia will report that they are treated with dignity and respect by all those involved throughout their dementia journey. They will also be open about living with dementia without fear of stigma or discrimination. It will be well recognised and understood by the public and professionals that dementia is a condition that increasing numbers of people will live with.
  • People living with dementia will be supported to self-manage the consequences of dementia and its treatment, to the degree they are able/wish to. They will know where to turn to get the clinical, practical, emotional and financial support they need when and where they need it. They will feel confident that they can practice their faith and spirituality and that others will help them when they need support.
  • People living with dementia will feel confident that their family, friends and carers have the practical, emotional and financial support they need to lead as normal a life as possible throughout the dementia journey. They will know where to get help when they need it.
  • People living with dementia will be well supported in all aspects of living with dementia, leaving them confident to lead as full and active life as possible. They will be able to pursue the activities (including work) that allow them to be happy and feel fulfilled while living with dementia.
  • People who have been affected by dementia and others will feel inspired to contribute to the life of their community, including action to improve the lives of others living with dementia. This includes having the opportunity to participate in high quality research.
  • People who are nearing the end of their life will be supported to make decisions that allow them and their families/carers to be prepared for their death. Their care will be well co-ordinated and planned so that they die in the place and in the way that they have chosen.

Sunshine Live in Care will work jointly with our NHS Health partners to:

Develop trust – which starts with therapeutic relationships between people and their Carers.

Work collaboratively across agencies, to support dementia care partnerships with GP’s and other health services.

Work with partners to provide seamless discharge planning and supporting transition of care back to the person’s home, with our Rapid Response services.

Support choice – working with people and carers to encourage active participation in care and decision making.

Managing risk; and reducing social isolation through supportive care co-ordination.

Supporting the needs of primary carers and safeguarding vulnerable people.

Maximising efficiency by fostering links with other community services and adopting innovative ideas to enhance well-being.  Developing strengthened ways of working with partners to maximise resources.

Delivering complex care in community settings; and thus reducing avoidable hospital admissions and promotion of early discharge

Facilitating the adoption of new technology to enhance dementia care.  Using Tele-health and mobile technology to support complex care in the home.

Further Information

You can obtain further information on Dementia by clicking on the links below:

NHS Dementia Guide

The Dementia Guide By Alzheimer’s Society 

Introduction to Dementia By Alzheimer’s Research UK 

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